One year with Type 1 Diabetes

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WOW!! It’s been a year since our little rainbow was diagnosed with Type 1 Diabetes (T1D). A year ago we almost lost her. I live that day over and over in my head. I try to think of what I could have done differently to help her. I think, I should have seen the signs way sooner, save her from how sick she got. My heart breaks thinking about it all.

March 4, 2013, 9:35 AM EST-
I pick up the phone and call her doctor. The secretary answers.

secretary- Dr M office, K speaking.

Me- Hi, this is Erica calling on behalf of my daughter. I think there is something wrong with her but I don’t know what.

secretary- What symptoms is she showing that make you think that?

Me- She’s not eating, she’s drinking a ton of water, she is peeing randomly and it’s so much even her hair gets wet, she is sleeping 18-20 hours a day, I am starting to see her ribs and spine, she complains that her tummy hurts and she is having wild mood swings.

–I think she is going to say, “I’ll talk to Dr M and see what he says.” or “Can you come in later today or tomorrow?

secretary- (a sigh and a pause that seemed like an eternity) How soon can you get here!

Me- (my heart pumping faster and harder then I ever felt it before, something was really wrong with my little girl) I can get there is 45 minutes.

HANG UP PHONE. I then have to call Chris, he has the van. He is on his way. I have to try to change our girl, she fell asleep while I was on the phone and she peed again. She won’t wake up. Chris gets here and carries her out to the car. On the way to the doctor I watch her the whole time.

March 4, 2013, 10:20 AM-
We arrive at her doctor’s office. The secretary immediately asks us to get a urine sample from our child. And within 15 minutes of walking into the door we see the doctor.

Doctor M- Tell me the signs that your child was presenting that lead you to call me.

Me- I repeat what I told the secretary

Doctor M- She has very high sugar in her urine and with what you have said I think she has type 1 diabetes.

My mind shuts off (Dr M is talking but I can’t hear him). I cry. My baby, is she going to be ok? What’s going to happen next? My heart is racing. Is she going to be ok? My mind turns back on.

Doctor M- I need you to head straight to the hospital, don’t go home for anything, go straight to the hospital.

diabetes-brave

Within an hour she is in a hospital bed, two IV’s in her arms, heart rate monitors hooked up to her, oxygen levels being monitored and tons of blood tests happening. My little 3 year old girl should not look like this, she should be outside running, laughing with her sister.

She spent 6 days in the hospital. The first two days we were told she should be in ICU but they put a nurse in our room so she could stay in the room she was in. We found out her blood sugars had been high for at least 3 months prior to us coming in. We also spent the next 6 days learning about what t1d is, how to take care of it and what to expect for the rest of her life.

A year ago our lives got turned upside down. A year ago our 3 year old had to grow up faster then most kids. A year ago we were all scared.

When your child is diagnosed with t1d you learn about the disease really fast.You learn you knew nothing and now you know too much, more then you ever wanted to know.

diabetes-rainbow

This is our brave little girl today. She is managing her diabetes extremely well and has come a long ways health wise. This is a battle she will have to face for the rest of her life but she is facing it so strong.

In the past year so has gone from screaming and begging us to not check her blood sugars to testing it herself (with supervision of course). She has gone from scream and begging us to not hurt her when giving injections ( from us even having to sit on her) to rolling up her sleeves for a shot and even reminding us that we need to do one. She is ready to receive a insulin pump. She’s scared, but I know she can do this next step in her journey. She’s proven to me time and time again how amazing and brave she is.

When I wrote this I originally was going to write, “Celebrating One year with Type 1 Diabetes” as the title. I’m not sure if it’s a celebration, maybe in the sense that we are happy she is alive and thriving, but really We’d be happier if t1d didn’t even enter her life. It’s so hard sometimes to think about it all. T1D is part of her now, I can’t hate it, it would mean I don’t like part of my child. At the same time, I wish it didn’t have to be like this for her. So I left “Celebrating” out of the title.

diabetes-battle

I’m adding this photo because in the past year I can’t even count how many times I’ve heard “At least it’s not cancer”. I get at least one email or message after a diabetes post saying that. So I’m going to say this-
Diabetes SUCKS!! My 4yr old has to have her blood sugar checked 6-12 times a day. That means poking her finger that many times. She has to get insulin injections 4 times a day. I’ve been told the insulin burns a bit going in. She has to wake up in the middle of the night often to drink a juice box because she has a sugar low. She’s only 4 and has to face more then most people do. She has to do this for LIFE to LIVE. She’s my brave girl who is battling Type 1 Diabetes everyday. So please think before you tell me to be happy it’s not cancer. I’m glad she doesn’t have to face it but she is facing a different battle. Thank you.

photo(3)

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I’m ending on a good note. First with a song my dad wrote for our little girl, we made a video of her life to show that T1D effects anyone, even the most normal looking child. And second please follow my husband’s new blog, it’s T1D from his prospective.

t1d-dad

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Thank you The Princess and The Pump for the quote/photo.